Table 1 Sample individual interview guide questions

1. From your perspective as a (person with dementia/care partner/service provider/first responder/expert in ethics, policy, or the law), what ethical concerns are associated with the release of personal information in alert systems?

2. From your perspective as a (person with dementia/care partner/service provider/first responder/expert in ethics, policy, or the law), what legal concerns associated with the release of personal information in alert systems?

3. What are the implications of releasing a missing person’s information to the public and as a part of the public record?

 a. In what ways can the release of personal information infringe on a person’s right to autonomy (freedom to make choices) and privacy?

 b. How does an alert system impact the person’s right to control when, how, and to what extent their personal information is released to others?

 c. How can the release of personal information to the public place a person with dementia at risk for harm?

4. In what ways may privacy outweigh safety and vice versa?

 a. How can persons with cognitive impairment or dementia retain their rights while using alert systems?

5. Is there anything else that you would like to contribute to today’s discussion that we haven’t addressed in this interview?