Table 6 Participants’ opinions on informed consent
From: Public awareness, attitudes, and motivation toward biobanks: a survey of China
Variable | Total (N, %) |
|---|---|
Preferences for types of informed consent | |
I want to be informed and asked for my consent each time my sample is needed for research. | 256 (41.56%) |
I want to only be informed each time my sample is needed for research. My consent is not necessary. | 135 (21.92%) |
I do not want to opt out of the research unless I change my mind and oppose the future use of my sample. | 119 (19.32%) |
At the beginning, give me some options to specify that my sample cannot be used for certain types of research. | 73 (11.85%) |
Once I have provided my sample, I have no interest in knowing any further detail. | 33 (5.36%) |
Content of informed consent form (multiple choice) | |
Privacy protection measures | 436 (70.78%) |
Purpose of sample use | 389 (63.15%) |
Ownership of sample | 386 (62.66%) |
Rights and obligations of donor | 369 (59.9%) |
Duration of sample storage | 365 (59.25%) |
Others | 3 (0.49%) |
Is it necessary to obtain your renewed informed consent if there are changes in the use of your sample? | |
Extremely necessary | 258 (41.88%) |
Very necessary | 182 (29.55%) |
Moderately necessary | 115 (18.67%) |
Slightly necessary | 49 (7.95%) |
Not necessary at all | 12 (1.95%) |