Variable | Patients (n = 46) | Families (n = 54) | |||||||||||
---|---|---|---|---|---|---|---|---|---|---|---|---|---|
Mean | SD | Mean | SD | t | p | ||||||||
Age (years) | 57.1 | 14.68 | 53.14 | 13.57 | 1.4 | 0.160 | |||||||
Perceived health (0–10) | 4.36 | 2.31 | 6.03 | 2.19 | −3.69 | < 0.001 | |||||||
n | % | n | % | Chi | p | ||||||||
Sex | Female | 28 | 60.9 | 41 | 75.9 | 2.63 | 0.105 | ||||||
Male | 18 | 39.1 | 13 | 24.1 | |||||||||
Religion | Protestant | 11 | 23.9 | 13 | 24.1 | 2.28 | 0.684 | ||||||
Catholic | 3 | 6.5 | 7 | 13 | |||||||||
Buddhism | 11 | 23.9 | 10 | 18.5 | |||||||||
Others | 21 | 45.7 | 24 | 44.5 | |||||||||
Marital | Single | 7 | 15.2 | 11 | 20.4 | 6.53 | 0.088 | ||||||
status | Married | 27 | 58.7 | 39 | 72.2 | ||||||||
Widowed | 7 | 15.2 | 2 | 3.7 | |||||||||
Others | 5 | 10.9 | 2 | 3.7 | |||||||||
Economic | Satisfactory | 6 | 13 | 9 | 16.7 | 3.62 | 0.459 | ||||||
status | Somewhat satisfactory | 24 | 52.2 | 31 | 57.4 | ||||||||
Somewhat unsatisfactory | 14 | 30.4 | 9 | 16.7 | |||||||||
Unsatisfactory | 2 | 4.3 | 5 | 8.4 | |||||||||
Awareness of the Act | |||||||||||||
Highly aware | 14 | 30.4 | 17 | 31.5 | 2.61 | 0.455 | |||||||
Somewhat aware | 19 | 41.3 | 28 | 51.9 | |||||||||
Heard of it | 10 | 21.7 | 8 | 14.8 | |||||||||
Unaware | 3 | 6.5 | 1 | 1.9 | |||||||||
Advance LST statement signed | |||||||||||||
Yes | 9 | 19.6 | 13 | 24.1 | 0.294 | 0.587 | |||||||
No | 37 | 80.4 | 41 | 75.9 | |||||||||
Suspension of meaningless LST | |||||||||||||
Agree | 22 | 47.8 | 22 | 40.7 | 0.89 | 0.828 | |||||||
Somewhat agree | 17 | 37 | 25 | 46.3 | |||||||||
Somewhat disagree | 6 | 13 | 6 | 11.1 | |||||||||
Disagree | 1 | 2.2 | 1 | 1.9 | |||||||||
Who would you discuss suspending LST with | |||||||||||||
Spouse | 14 | 30.5 | 25 | 46.3 | 2.652 | 0.753 | |||||||
Children | 12 | 26.1 | 11 | 20.4 | |||||||||
Parents/sibling | 7 | 15.2 | 6 | 11.1 | |||||||||
Friends | 1 | 2.2 | 1 | 1.9 | |||||||||
No one | 12 | 26.1 | 11 | 20.4 | |||||||||
Experience of participating in LST decisions for family | |||||||||||||
Yes | 9 | 19.6 | 12 | 22.2 | 0.106 | 0.745 | |||||||
No | 37 | 80.4 | 42 | 77.8 | |||||||||
Components of meaningless LST you want to discontinue | |||||||||||||
Cardiopulmonary resuscitation | 19 | 41.3 | 20 | 37 | 0.19 | 0.663 | |||||||
Ventilator | 17 | 37 | 12 | 22.2 | 2.61 | 0.106 | |||||||
Hemodialysis | 28 | 60.9 | 33 | 61.1 | 0.001 | 0.980 | |||||||
Chemotherapy | 32 | 69.6 | 30 | 55.6 | 2.06 | 0.150 | |||||||
ECMO | 23 | 50 | 18 | 33.3 | 2.85 | 0.091 | |||||||
Blood transfusion | 31 | 67.4 | 36 | 66.7 | 0.006 | 0.939 | |||||||
Vasopressor | 35 | 76.1 | 34 | 63 | 2.01 | 0.157 | |||||||
Parenteral nutrition | 34 | 73.9 | 42 | 77.8 | 0.203 | 0.652 | |||||||
Oxygen therapy | 26 | 56.5 | 37 | 68.5 | 1.534 | 0.216 | |||||||
Fluid therapy | 36 | 78.3 | 39 | 72.2 | 0.483 | 0.487 | |||||||
Reasons for deciding to discontinue meaningless LST | |||||||||||||
Recovery possibility | 8 | 17.4 | 13 | 24.1 | 0.719 | 0.869 | |||||||
Patient suffering | 26 | 58.5 | 29 | 53.7 | |||||||||
Family suffering | 9 | 19.6 | 9 | 16.7 | |||||||||
Economic burden | 3 | 6.5 | 3 | 5.6 | |||||||||
LST decided by family when the patient cannot | |||||||||||||
Agree | 34 | 73.9 | 48 | 88.9 | 3.77 | 0.052 | |||||||
Disagree | 12 | 26.1 | 6 | 11.1 | |||||||||
Advance LST statement signed at admission | |||||||||||||
Definitely agree | 17 | 37 | 27 | 50 | 5.36 | 0.147 | |||||||
Somewhat agree | 20 | 43.5 | 24 | 44.4 | |||||||||
Not likely | 4 | 8.7 | 2 | 3.7 | |||||||||
Definitely not | 5 | 10.9 | 1 | 1.9 | |||||||||
Time to sign the advance LST statement | |||||||||||||
When hospitalized for treatment | 8 | 17.4 | 4 | 7.4 | 9.1 | 0.168 | |||||||
Critical condition but conscious | 19 | 41.3 | 30 | 55.6 | |||||||||
When diagnosed with a terminal illness | 7 | 15.2 | 8 | 14.8 | |||||||||
When hospice care is decided | 8 | 17.4 | 6 | 11.1 | |||||||||
When you are healthy | 4 | 8.6 | 6 | 11.1 | |||||||||
Who should decide the suspension of LST | |||||||||||||
Patient | 34 | 73.9 | 42 | 77.8 | 0.458 | 0.795 | |||||||
Family members | 10 | 21.7 | 9 | 16.7 | |||||||||
Health professionals | 2 | 4.3 | 3 | 5.6 | |||||||||
Who explains LST to the patient at the end-of-life | |||||||||||||
Spouse | 12 | 26.1 | 15 | 27.8 | 0.036 | 0.849 | |||||||
Children | 7 | 15.2 | 11 | 20.4 | 0.447 | 0.504 | |||||||
Parents | 1 | 2.2 | 4 | 7.4 | 1.432 | 0.231 | |||||||
Relatives/sibling | 1 | 2.2 | 1 | 1.9 | 0.013 | 0.909 | |||||||
Health professionals | 27 | 58.7 | 26 | 48.1 | 1.109 | 0.292 | |||||||
Others | 1 | 2.2 | 0 | 0 | 1.186 | 0.276 | |||||||
When recovery is impossible, do you agree to discontinue LST? | |||||||||||||
Yes | 32 | 69.6 | 47 | 87 | 4.571 | 0.102 | |||||||
No | 6 | 13 | 3 | 5.6 | |||||||||
Depends on situation | 8 | 17.4 | 4 | 7.4 | |||||||||
Who should make the decision about LST for those without immediate family | |||||||||||||
Primary physician | 21 | 45.7 | 21 | 38.9 | 10.17 | 0.070 | |||||||
Hospital ethics committee | 1 | 2.2 | 5 | 9.3 | |||||||||
Doctor and ethics committee | 15 | 32.6 | 26 | 48.1 | |||||||||
Appointed social worker | 4 | 8.7 | 1 | 1.9 | |||||||||
Appointed guardian | 2 | 4.3 | 1 | 1.9 | |||||||||
Others responsible for the patient | 4 | 8.6 | 1 | 1.9 |