Skip to main content

Table 3 Views on returning individual ggenetic results

From: Perspectives of researchers, science policy makers and research ethics committee members on the feedback of individual genetic research findings in African genomics research

Which of the following best characterizes your view on return of individual genetic research results? Please tick all that apply

Individual genetic research results should never be fed back in African genomics; there are too many questions and uncertainties

(n = 2, 3%)

Returning some findings is an important way of giving back to the people who participated in the research (reciprocity)

(n = 40, 53%)

Participants have a right to know things about their health that are revealed in African genomics

(n = 44, 58%)

Decisions about what should be returned should be made on a case-by-case basis, and they should be made in consultation with the ethics committee

(n = 38, 50%)

There should be clear guidance about how to go about the return of individual genetic research findings in African genomics

(n = 49, 64%)

Other

(n = 2, 3%)

  1. *Data are number (percentage) of respondents. Because the question required a tick all that applies, percentages do not add up to 100.